| Independent Living Philosophy: Defining Consumer Control
Background This differs from many social service agencies which play a caretaker or protector role to "vulernable populations." ILCs believe that the freedom to make choices, including mistakes, empowers people to further their involvement in their life and community. Persons with disabilities are not clients who professionals advise what is best for them. Instead, they are consumers of services, consumers who make informed decisions on the goals they want to achieve and ILCs give them the tools to help them achieve those goals. It's consumer control rather than a social service. Though a simple statement, this philosophy defines a focus that greater society often finds difficult to accept. Independent Living, A Brief History A sense of unity and self-confidence developed as the residents lived in close, continuing contact with each other. As they became more aware of the degree to which control over their lives had been taken over by medical and rehabilitation professionals, the students drew on their own experience to develop a philosophy of independent living. The students believed that they didn't need to change to become integrated, but rather the environment and the attitudes toward persons with disabilities needed to change. The core of these students moved on to start the Center for Independent Living in Berkeley. Bringing control to the consumer It is also important to note that ILCs do not operate any type of residential facility. ILCs are not assisted living or skilled nursing facilities, a common misconception. Instead, independent living advocates direct their efforts toward the goal of freeing people with disabilities from institutional living, while educating the community in ON accessibility issues. With the proper support system from the community, people with disabilities can live where they choose and pursue their dreams just as any other individual does. Toward this mission, ILCs provide peer counseling, information and referral, independent living skills training, individual advocacy for a particular individual and systems advocacy for the community. Individual centers may provide more services, including:
Focus on Empowerment Independent Living Centers realize that persons with disabilities don't need "to be taken care of" but rather need to be empowered to make their own choices and manage their own lives. In other words, ILC staff don't "manage case loads" or "follow up" to other agencies on referrals. The consumer has an active role in the services he or she receives, constantly giving feedback and expressing concern with goals and expectations. By presenting a variety of methodologies to the individual, even those persons with disabilities aren't traditionally thought to have the ability to make their own choices, ILCs allow everyone to have access to making those decisions. ILCs believe the role of empowerment is key to the independence of a person with a disability. For many persons with disabilities, control has always been unavailable because of agencies "taking care of their needs." However, when one is empowered to live his or her own life, the consumer is more active and independent and able to be a vocal and productive member of society. |